Surviving a child cancer diagnosis isn't easy. This post lists the things I wish i'd known from day one, we hope this may help other parents in the future.
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Day 59: Surviving Christmas with Cancer
We just about survived Christmas, it’s been challenging, emotional, hilarious, fun, festive, frustrating, filled with laughter and baby sharks, tears, tantrums, lots of temperature checking and ALL the food!
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Day 53: FOMO – Fear of Missing Out
FOMO = Fear Of Missing Out. Bilbo is missing school, missing experiences and it gives me a heart wrenching "FOMO" on his behalf.
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Day 50: Managing expectations and Winging It
Since D Day we’ve been winging it sometimes we’re getting it wrong VERY WRONG and some days I swear I deserve the Oscar equivalent for parenting.
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Day 44: Pearson, Tears and Dinosaurs
55 Days It has been exactly 55 days since I was last in the Pearson office in London. The week before Bilbo was diagnosed I traveled to our Hoboken office for a leadership team meeting. It was a great week, I was left energised and excited. I had new things…
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40 days of cancer…
10 more days And like that another 10 days have passed, we’ve now hit 40 days of fighting cancer. It feels like yesterday I was writing 30 days of cancer… Time flies when you’re having fun – hmmmmm hardly BUT weirdly for the last 2 days that is actually true. We’ve enjoyed…
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Day 38: Things I hate about cancer
Things I hate about cancer. When you get a cancer diagnosis there is no time off for good behaviour. You’re not off the hook Even on a week when we have limited time in the hospital and less medication. You can’t switch off the big C button, be normal, and…
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Ways You Can Support a Family Fighting Cancer
There are a number of ways you can support a family fighting cancer. If you’re wondering how you can help then please read this blog and share it with others. Over the last month, we’ve had so much support from friends, family, work colleagues, and strangers. Everyone has asked, “What…
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30 days of cancer…
I can hardly believe we’ve been battling cancer for 30 days. Some days it feels like we’ve been doing it for a life time. Other days I feel so new and useless. It is safe to say that it has been the hardest 30 days of my life. Harder than…
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Day 24: Bilbo’s Wall of Love
Day 24 After some rough days, today has been another good day. It involved a trip to Oxford for round four of chemo. It also involved a chat with the physio and some car racing, more computer tests with the research nurse, a chat with our social worker and of…