Day 743: 126 Days of Silence
I haven’t written since we hit the half way point 126 days ago. The gaps between my posts have been increasing and so has the silence.
Category: Bilbo’s Journey
Bilbo’s Journey is about our journey and how we are dealing with having a child with cancer.
In October 2018 it was with the heaviest of hearts, we shared the news our amazing gorgeous Bilbo, had been diagnosed with Acute Lymphoblastic Leukaemia (ALL).
We’ve been overwhelmed with love and kindness from across our friendship groups, our family and complete strangers. We are under the Kamran ward team at John Radcliffe hospital in Oxford. We are getting the very best possible care.
To stop us from having to repeat and tell so many people pretty exhausting news and updates we’re updating those who want to know through our blog. Godbers Travel was a travel blog, a living breathing online memory book for our boys. We see this as an unexpected journey we need to complete before our normal travel can resume.
I hope you will find our posts honest and frank as we try to give you insight into what life is like for a family and child with cancer.
A selection of our tops posts:
* Ways You Can Support a Family Fighting Cancer
* Day 5: Learning to be a parent who’s child has cancer
* Help Bilbo Raise Funds for Cancer #Donate4Bilbo
Day 617: The Halfway Point
Day 617: Today marks the halfway point for Bilbo’s treatment. We’ve been fighting cancer for 617 days and I write this post with mixed emotions.
Day 590: 15 Weeks Of Isolation
We’ve been isolated now for 15 weeks and I wanted to document some of our Covid-19 experiences the good, the bad and what we’ve learned as a family.
Day 564: LEGO House Make A Wish – Postponed
Day 564: LEGO House Make-A-Wish postponed, we should have been flying to Denmark on Monday instead we will enjoy a staycation in the garden.
Day 540: An Unusual Lumbar Puncture
Bilbo is no stranger to lumbar punctures he’s had 15 over the last 540 days. But today our trip to Oxford was anything but normal.
Day 529: Grief
Day 529: Grief, this isn’t just any grief, it is a confused, upside down version of it because whilst I am grieving so is the whole world.
Day 503: Managing children at home through isolation
As a cancer family we’re very used to isolation. Here’s some of our top tips and resources for surviving isolation and making learning fun.
Day 499: Coronavirus (Covid19)
Day 498: Coronavirus I thought I would tackle the topic of Coronavirus. First and foremost we are taking our lead from experts.
Day 481: Maintenance Cycles
Day 481: We’re currently in cycle 3 of 11 maintenance cycles. And our end of treatment date is set for 18th March 2022 this is what maintenance looks like.
Day 452: Complacent
I think we’ve been riding high on the back of the most amazing Christmas where cancer was not welcome. And we got complacent.
