godberstravel, #Donate4Bilbo, Bilbo, childhoodcancer, cancer, leukemia, leukaemia, living our best life london calling, london calling
Bilbo's Journey

Day 564: LEGO House Make A Wish – Postponed

I am sat writing in my kitchen, surrounded by Brio train track, there are the remnants of our weekly family quiz on the table (Rich’s Cornflake mask) I’m on my second cup of coffee and I felt the urge to write something…

I’ve not been feeling like writing very much since we’ve been in isolation. The words don’t seem to be able to make in from my head onto the page in the same way they used to. To be perfectly honest i’m probably like every other parent BLOODY EXHAUSTED!

But this morning is different, I feel a little sad and i’ve not been able to shake the ache I have in my tummy, the little extra weight i’m feeling on my shoulders. I am also being a HUGE grump. So i’m attempting to get it off my chest.

Make-A-Wish To Lego Land Denmark

godberstravel, #Donate4Bilbo, Bilbo, childhoodcancer, cancer, leukemia, leukaemia, living our best life london calling, london calling
LEGO Shop in London

This weekend I should have been packing. I should have been packing for us to spend a glorious 4 days in Denmark. I’d bought the boys new Lego t-shirts for them to wear to the airport. We were going to be making Bilbo’s wish to go to the home of Lego true.

He’d already planned the whole thing out and wanted to film it all to show his “followers” on YouTube. It has been marked on the calendar since we got the call from Make-A-Wish to confirm Bilbo’s wish had been granted.

The AMAZING team at Make-A-Wish had planned a beautiful week for us. Flying to Billund Denmark, staying in an Adventurer room – PERFECT for our little adventurer. They had arranged tickets to the park for us to enjoy and the cherry on the top was going to be a visit to the LEGO House.

LEGO House

Don’t get me wrong I know Bilbo would have loved Legoland but his wish was ALL about the LEGO House. Why? Because in Bilbo’s wild imagination he thinks this is where the master builders learn their trade and Bilbo wants to be a master builder when he grows up. He was so excited to come face to face with the giant dinosaurs made out of lego, duple and Technic.

How cool do these look?

He had planned how he was going to explore every inch the house had to offer. He checks YouTube regularly to see if there is new LEGO House content. We have watched every YouTube video there is about the LEGO House – multiple times over.

We were very excited to be able to make our own fish to put into the LEGO House fish tank

LEGO is Bilbo’s Happy Place

LEGO has been our life line during treatment. We’ve used it often as bribes, or rewards to get us through some of the tricky moments. It has helped keep Bilbo amused during hospital stays and when we’ve been isolated at home. It has brought so much joy into our home.

Whenever LEGO is involved Bilbo is happy:

godberstravel, #Donate4Bilbo, Bilbo, childhoodcancer, cancer, leukemia, CLICSargent, giveblood, gofundme, bilbosjourney, our new normal, lego
This is Jurassic World
godberstravel, #Donate4Bilbo, Bilbo, childhoodcancer, cancer, leukemia, CLICSargent, giveblood, gofundme, bilbosjourney, our new normal, making memories, Christmas 2018
The love of LEGO is a family affair
#donate4bilbo, bilbosjourney, childhoodcancer, godberstravel, leukaemia, leukemia, Happy Days, legoland
LEGO Land Shop Windsor
godberstravel, #Donate4Bilbo, Bilbo, childhoodcancer, cancer, leukemia, CLICSargent, giveblood, gofundme, bilbosjourney, our new normal, legoland discovery centre birmingham
Lego Discovery Birmingham
We got through most of treatment trading stars for LEGO

LEGO Staycation

Instead of working next week we’ve decided to take the week off anyway. Tuesday is my birthday, the weather is looking good so we are going to have a holiday our way.

On Monday my mum will have the boys and Rich and I need to come up with a way to make LEGO come to life in our back garden…I’m not quite sure what we’re going to do yet…if you have any ideas PLEASE send them my way.

Bilbo is the creative one, so I am struggling!

One thing is for sure we will make sure both boys have a magical experience.

Patience

Bilbo has taught me a lot about patience, he’s not complained once that we can’t go. He understands that it isn’t anyone’s fault, it is just one of those things. He knows we will go one day and he is right, we will make his wish come true, we will make it – one day.

But I think the issue is that as the adult, i’m feeling less patient. This week sees us scratch off week 9 of being isolated. We know that our shielding has already been extended and who knows if it will be again or when it will end.

We’re not in a rush to get back to normality, we will do what is right our family, for Bilbo to keep him safe, we have accepted this. Rich and I are both supported by our respective companies to work from home. We’re indebted to my mum for shielding with us and sharing our bubble so we have help with childcare and schooling. BUT…..

I Miss My Old Life

#donate4abilbo, bilbosjourney, childhoodcancer, godberstravel, leukaemia, leukemia, #childhoodcancerawareness2019, The Henry Allen Trust
Missing these guys so much…

Like everyone we miss our old life. I miss being carefree and disorganised. Not having to meticulously plan what we’re going to need for the week ahead.

I desperately miss people, my friends and work colleagues.

godberboys, godberstravel, bilbosjourney, #donate4bilbo, bilbosjourney, childhoodcancer, leukaemia, leukemia, highs and lows
Catching up with my team in London. Team Goals!
Waiting for a train in Monte Carlo.

Our garden in the sunshine feels quiet, I miss it being filled with our friends and kids fighting over the trampoline. I miss the sound of clinking bottles of prosecco filling up the recycling bin. The smell of the BBQ whilst listening to the gentle hum of people chatting.

The Year of No Regrets, 2018, godberboys, godberstravel, living our best life, memories
Enjoying time with Auntie Sam in Cornwall

And i’m grumpy about it all because in October 2018 I had my old life taken away…it was so abrupt and cruel. It threw us into a parallel universe, into a lane we didn’t want to be in.

godberstravel, #Donate4Bilbo, Bilbo, childhoodcancer, cancer, leukemia, leukaemia, mother of all meltdowns,
Blood Transfusion Thursday – Bilbo takes it in his stride, bloods is a good excuse for a box of Lego!

We survived largely because Bilbo is the bravest and strongest boy I know and his strength carried us all. It also helped that we had protocols with dates (most of the time) and an end point. That end point hasn’t changed, we still have 670 days of treatment left – we’re not even half way. BUT we never anticipated we’d be spending those days isolated. Hiding from a virus. With no end in sight…

And so as I read over the blogs from the last 18 months I realise I’ve been at my most anxious when we’ve had the least control. And so my anxiety is understandably taking over because there is no roadmap for this virus…we don’t know when things will go back to normal. I don’t have answers or a way to make sense of any of this.

BUT when we are finally able to, we will be getting on that plane to Denmark and soaking up everything LEGO has to offer in Billund and Bilbo’s wish will come true.

Did you know there are over 2000 children currently waiting for wishes.
#wishesarewaiting
https://www.make-a-wish.org.uk/wishesarewaiting/

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.