100 Days of Cancer…
Actually today marks 106 days but i’ve been too bloody busy to write or think about posting.
And not busy with cancer crap. I’ve been busy being a working mummy. Juggling family life. And I’m bloody loving it!!! We could be mistaken for being a relatively normal family. I’ve been into London, i’ve had drinks with colleagues and we’ve done everything in our power to not think about cancer.
How’s Bilbo doing?
He’s doing really well. I don’t want to jinx it, but he’s doing better than alright he’s continuing to prove every day just how bloody awesome he is.
On Wednesday last week Bilbo had a cocktail of chemo and a platelet transfusion. His little body is full of bruises. They’re particularly bad around his pressure points. He doesn’t complain but on Friday we enforced a rest day. Now for the boy who LOVES school this wasn’t easy but in partnership with the nurses we felt he needed some time. And to his credit he did rest – a bit!
Tomorrow is the final dose of chemo. This brings consolidation to an end. If you’re keeping up that is the end of the second phase (full details are here)
Before we move on Bilbo’s bloods will need to recover. And then he will have another Bone Marrow Aspirate where they will conduct the MRD. Everything centers around this result.
Distraction, distraction everywhere…
And these results weigh heavily on our minds. Distraction right now is most welcome. Whether this is work or our focus on doing normal family activities.
How am I feeling?
I can’t write about how I feel right now. Mostly because I don’t have the head space to deal with it. Rich and I are spending a lot of time talking about the ifs, buts and maybes. The uncertainty is tough on us all.
Everything is hypothetical until we get the results so for this reason I want to keep this blog positive and uplifting because it is the only way we can be until we have more information.
We don’t expect to have the results of the MRD for at least 3-4 weeks. Bilbo’s blood needs to recover and could take a few weeks and then we have to wait for the actual results to return.
Parents evenings, reward charts, Make A Wish planning, half term scheduling, decorating are all helping keep our minds focused.
And a huge thank you to the care package and gifts we’ve received in the last few weeks. They’ve also kept us amused and distracted.
What do the results mean?
The results mean everything. The results will let us know if the chemo is working. Assuming it is then it will be at this point we will be able to opt into the trial. And then we will find out what Bilbo’s treatment schedule will look like for phase three and phase five (maintenance).
Focusing on the positives
And so we’re doing what the Godber’s do best we’re focusing on the positives.
On Friday Bilbo will break up for half term. Last time Bilbo and I attempted to have a Mummy and Bilbo bonding time, we were diagnosed. I have 3 days booked off next week to try and revisit some of the activities we had to abandon. Keep your fingers crossed we’re able to enjoy them.
We have a visit from Grandma and Grandad to look forward to too.
We’ve celebrated Rich’s grandad Bill’s 93rd birthday with family.
We’ve enjoyed parents evening where we’re delighted to hear Bilbo is thriving at school despite cancer he’s made friends, made progress and today he’s brought home his first reading book which we enjoyed reading tonight.
Harrison has also turned a corner. He’s had a fantastic week at nursery and has even started to write his name. He’s so smart which sometimes is making our current situation really hard on him.
So tomorrow we wrap up chemo. And then we wait.
We’re going to make the most of the treatment break and make some memories together.
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