97 Days of Cancer…

We’ve reached the half way stage of this phase and 97 days of cancer. And (WHILST TOUCHING ALL THE WOOD) this phase hasn’t been as bad as we’d imagined it would.

I’d like to celebrate the last week and how much Bilbo has managed to achieve and enjoy.

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Fun with the Nikeal and Jayden, Bilbo enjoyed showing them his Lego and bossing them about.

Bilbo has made it into school, he’s been full of beans every morning. He’s walked, he’s ran and he’s enjoying every single moment of life.

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Harrison and Bilbo have been really enjoying playing doctors this weekend.
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Bilbo gave me sleepy medicine and a wiggle. I think the role play is helpful. He understand everything, I had all my vitals checked.
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We didn’t get much time to enjoy the very little snow we got in Milton Keynes as we had to go to hospital for chemo and a blood transfusion. We did have time to make magic hot chocolate though. Which is hot chocolate with snow spooned into it. Bilbo loves it and went out in his pj’s and wellies to get the snow.
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Bilbo collecting snow for his magic hot chocolate.
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Whilst Nanny and Mummy were at Morrison’s Daddy and Grandad took Bilbo on the Zog trail. Bilbo was so excited to tell me had a snowball fight with grandad.
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Grandad and Bilbo enjoying the Zog trail, H was less impressed!

How’s Bilbo doing?

The biggest difference is the change in how we’re managing his sickness. We’ve been giving him medicine every day morning, noon and night with an anti-sickness patch too. And it seems to be working!

Tonight Bilbo demolished a bowl of spaghetti and meatballs with a second helping. I think it might be the most i’ve seen him eat since before Christmas, it was a joy to see.

Of course now we need to consider when we wind the anti-sickness down. The cytarabine finished on Friday. This week and next we have two chemo appointments in Milton Keynes and then this phase is behind us.

Bilbo has been a bundle of energy which was why the blood results on Thursday were such a surprise.

His number was the lowest it has been and so on Friday he had his 5th blood transfusion. Bilbo takes these kinds of things in his stride. A charged up tablet and some lego and the 4hrs flew by.

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Whilst Bilbo plays mummy works 4hrs is a long time to sit around waiting.

We’d like to thank every single one of our friends and family who’ve taken the time to give blood or register to give blood. I’ve said it before and I will keep saying it, you are literally saving lives and we can’t thank you enough.

World Cancer Day

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We had a little competition going to see who could raise the most money. Hands down these boys won!!! Well done Nikeal and Jayden. And mummy!

This week it is also World Cancer Day, i’ve written about this before World Cancer Day 2019 – How can you help?

Over the weekend Bilbo’s grandma and grandad collected in Nottingham, our friends Claire, Nikeal and Jayden collected in Milton Keynes, Rich, my mum, dad and I also collected in Milton Keynes over Saturday and Sunday.

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Grandma and Grandad in Nottingham shaking their buckets.
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Rich volunteering at Morrison’s on Saturday.
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Nanny collecting at Morrison’s
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Drumming up some support for our Tombola and Raffle.

Bilbo made an appearance and shook the bucket and encouraged people to dig deep.

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Helping mummy collect today in Morrisons

I know we all heard endless stories of how cancer has touched so many lives “cancer doesn’t discriminate” we met people in the middle of treatment, in remission and at the start of their journey.

If you haven’t had a chance to donate there are a couple of options.

You can donate to Bilbo’s fund for CLIC Sargent and I still have wristbands I can send you.

Donate4Bilbo

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There is still time to donate and I can pop a wrist band in the post. Go to Bilbo’s GoFundMe page and send me a DM with your address.

OR

For World Cancer Day 2019 our heart is very much with a special boy called Harry. You can read his story here:

Harry needs to raise £500k for life saving treatment. Harry is treated in the same ward as Bilbo. Our thoughts are with Harry and his family and we truly hope they are able to make their target.

Mad About Harry GoFundMe

Mad About Harry Website

What next?

Tomorrow starts another week and as with the last few we’re taking each day as it comes. We’re letting Bilbo lead and we’ll continue to try and pack as much fun into every day.

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