Day 5: Learning to be a parent who’s child has cancer

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5 Responses

  1. Justin says:

    When Irina was in hospital with preeclampsia for 10+ days, the hours and hours, day on day, seemed like an eternity, so I think I know what you mean. One day in crisis can be like four. Saying ‘as germ free a possible’ made me realise how terribly dangerous and frightening this journey is. Maybe Alex and Bilbo could talk via Skype and see each other and show toys from our front windows. Thanks again for the detailed update, Kim. P.S. I hate cinemas too! X

  2. Alyson Long says:

    Wish I could give you a big hug. You got this!

  3. Maddy says:

    What a trip! Fuck Cancer! Hugs, Love and most of all STRENGTH to ALL!!

  4. Michael R says:

    I know you’re well into treatment at this point, but as someone who is a bit further down the road (our daughter was diagnosed April of last year), be aware that burnout is real and insidious. Our daughter is in her fourth month of maintenance (only a year an four months to go!) and while we are past the upheaval of the first six months and into a true new normal (in that there’s a monthly routine now, instead of things changing every few weeks or so), I have found it difficult to enjoy and truly appreciate the fact that we’re a good way down the road to recovery. I’m less busy now and have less to fear, since our daughter is responding well to treatment, but I find it hard to find much solace in that. I think it’s down to burnout. I didn’t do a very good job of taking care of myself during the initial six to eight month period and now I’m paying the price. So I would urge you and anyone reading this to try to figure out what you need for yourself (girl’s or boy’s night out from time to time, weekend getaway without the kids, some alone time every week, seeing a therapist–whatever) and doing that while you’re in the thick of it, instead of putting it off. You’ll be glad you did.

    • godberstravel says:

      Thank you for taking the time to post and providing a view from the “other side” I think I’m realising this right now and it’s not to late to put some better guard rails in place for better self care. Glad to hear to your daughter is on the road to recovery.

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